Mission: To provide accurate, up-to-date education on how to cope with Lactation After Loss to grieving mothers, as well as to the care providers who care for these women after the loss of a baby.

Goals:
Expand Rowan's Milk Survey.
Develop a Brochure on Lacation After Loss for mothers.
Make Brochure and results of Survey available to care providers.
Showing posts with label CHD. Show all posts
Showing posts with label CHD. Show all posts

Friday, October 22, 2010

Jill's Story

Joshua was born with Hypoplastic Left Heart Syndrome. After 2 open heart surgeries, the first one at 3 days old, and the 2nd at 1 month old, Joshua passed away at 7 weeks old on Oct. 6, 2010. I pumped almost exclusively those 7 weeks and stored all of my pumped milk.

Just today, Oct. 22, I donated almost 900 ounces of my milk to the Indiana Milk Bank. Please visit my blog to follow our story.

Michelle & Sawyer's Story

My son was born prematurely at 28 weeks via emergency csection. We knew he may be early, so we prepared mentally as best we could.

Because I had low fluid during the pregnancy, I did not know about his heart.

The day after he was born, we learned he had a very severe congenital heart defect named Tetralogy of Fallot with Pulmonary Atresia.

He died nearly 2 days after he was born, in my arms.

I honestly think my milk came in so quickly with my son because I was able to hold him against my chest when he died. I believe this kangaroo care brought so much out of me and him as well. I only wish that our time together, would have been much longer.

**Michelle has started Sawyer's Heart which hosted a Walk To Remember just last weekend, and plans to donate memory boxes in Sawyer's memory. Follow her project on Sawyer's Heart on facebook or on her Blog.